What Can You Do When Living With a NET?
Like all cancers, a NET can change your life. It is normal to feel confused, overwhelmed, afraid, and even angry. Your family and friends may feel the same way, too.
Engage your health care team
Knowing whom to go to can help you navigate your journey. If you or a loved one has been diagnosed with a NET, you will likely have multiple HCPs available to help you along the way. Some HCPs who may be part of your health care team include the following:
Oncologist
Gastroenterologist
Surgeon
Nurse
Dietitian
Psychologist/social worker
Continue your daily routine
You may have family members, caregivers, or friends who can be there for you throughout this journey. Don't be afraid to ask them to be part of your support network.
Your loved ones can help:
Provide emotional support
Take notes and ask questions at your doctor appointments
Keep track of your appointments and paperwork
Drive you to your appointments
Prepare meals and do the grocery shopping
You may want to let the people in your life know how you feel and what you are going through. Asking them to be more involved can help you continue with your regular routines.
Build a support network
In addition to your family, friends, and caregivers, there are other people like you, including those in groups, who may want to help. There are patient groups for people with all types of NETs. These groups work to improve the lives of people living with NETs through support, awareness, education, research, and advocacy.
Building a support network is a great way to learn about your NET and get more engaged with your care.
You can ask your doctor or nurse for more information about groups in your area.