The NET Alliance™ and Novartis Oncology continue their commitment to improving knowledge and management of neuroendocrine tumors, and empowering patients to be more informed advocates.

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Newly diagnosed with a neuroendocrine tumor?

My NET Checklist For Newly Diagnosed Patients

If you are newly diagnosed with a carcinoid tumor, also known as a neuroendocrine tumor or NET, you've come to the right place – The NET Alliance.

It is normal to feel confused, overwhelmed, afraid, and even angry. You are not alone. Many people who have been diagnosed with a carcinoid or neuroendocrine tumor are able to understand their disease better.

My NET Checklist for Newly Diagnosed Patients is designed to give you information and guidance to help start your journey with a neuroendocrine tumor.

  • Understand your disease. Learning about your neuroendocrine tumor and understanding the changes your body is going through is a great start to living day-to-day with cancer.
  • Ask which tests are right for you. Learn about the different tests your doctor may order to diagnose and monitor your NET.
  • Talk to your nurse or nutritionist. In addition to your doctors, your nurse may also have helpful advice about your neuroendocrine tumor and how to continue your daily activities. Your nutritionist may have suggestions for changes in your diet. Eating healthy foods may not only help you feel stronger, but may help relieve some of your symptoms.
  • Ask questions. Ask your doctors a lot of questions and write down the answers so you can read them later. Asking questions can help keep you informed about your disease and more involved with your care.
  • See a team of medical experts. Seeing a multidisciplinary team can help ensure you receive the best possible care. Talk to your doctor about different specialists you should see. Since NET are a rare disease, you may also want to see a NET expert. This is a doctor who has had practice and experience with other people affected by neuroendocrine tumors. A NET expert may have important insights about your care. Click here to find a NET expert in your area.
  • Share details about your symptoms and your lifestyle. Remember, your doctors only know information that you share with them. That’s why it’s important to tell your health care team everything about your disease and lifestyle. Be sure to share changes in your lifestyle or new symptoms, even those that seem unrelated to your neuroendocrine tumor.
  • Talk to your family and friends. Be sure to talk to your family and friends about what you’re going through. Don’t be afraid to ask them for help.
  • Bring a family member or a friend to your doctor visits. Seeing the doctor can be overwhelming. A friend or family member can help you remember to ask certain questions and take notes, or be there for support.
  • Join a support or advocacy group.Start building your support network by joining a support or advocacy group. Other people affected by neuroendocrine cancer can offer you information and support.

More help from The NET Alliance

Be sure to check out these resources to help you on your journey.

Visit The NET Alliance resource library. It’s important to stay informed about your disease. At The NET Alliance resource library, you can download all of the educational materials found throughout our website.

Become familiar with your neuroendocrine tumor and start your journey today. Select your type of NET to start exploring thenetalliance.com.

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