The NET Alliance™ and Novartis Oncology continue their commitment to improving knowledge and management of neuroendocrine tumors, and empowering patients to be more informed advocates.

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Staying vigilant against an elusive cancer

It is not uncommon to see patients with these tumors who have been misdiagnosed or miscategorized as having either no condition or some other medical condition.

— Dr Anthony Heaney

Diagnosing a NET can be challenging for a number of reasons1:

  • Tumors can form in multiple locations, including the lungs, pancreas, and difficult-to-pinpoint areas within the midgut2
  • The primary tumor is often small and may be discovered incidentally, such as during a routine exploratory exam or surgical procedure
  • NET vary widely in their clinical presentation3; symptoms are often nonspecific and can be mistaken for those of other more common conditions,1 such as irritable bowel syndrome (IBS), diabetes, or asthma1,2
  • Some NET may be asymptomatic for years and may only begin to cause symptoms after they have metastasized, usually to the liver or bone1

These factors and others can contribute to a delay in diagnosis for many patients. In fact, the estimated time to diagnosis for certain types of gastrointestinal (GI) and pancreatic NET is up to 5 to 7 years from initial onset of symptoms.4

Typical diagnostic pathway for neuroendocrine tumors (NET)

About 50% of patients with reported disease stage have either regional or distant metastases at diagnosis.5

Suspect, detect, and diagnose: We can do better

Accurate and earlier NET diagnosis is the first step in shortening the time to optimal care and improved outcomes for patients.1

Currently, the estimated time to diagnosis for certain types of NET is up to 5 to 7 years from initial onset of symptoms.4 Click on the graphic above to learn more about the typical diagnostic pathway for NET.

A key goal is to help increase diagnosis rates and decrease diagnosis times for patients suffering with NET.

A number of biochemical tests and imaging techniques have important roles in NET diagnosis.6 Accurate pathologic reporting is also critical for definitive diagnosis.

Learn more about different types of NET and their symptoms

Videos of Patients With Neuroendocrine Tumors and Their Stories 

Resource for Nurses: Take the NET Nurse Quiz! 

The NET Nurse Quiz is an interactive quiz to test your knowledge on neuroendocrine tumors and how the disease affects your patients.

Are you ready for the quiz?