The NET Alliance™ and Novartis Oncology continue their commitment to improving knowledge and management of neuroendocrine tumors, and empowering patients to be more informed advocates.

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Know your disease 

Learning to live with a gastrointestinal neuroendocrine tumor starts with understanding your disease and taking an active role in your care.

This will help you

  • Get the best care possible
  • Stay on top of your care plan
  • Keep track of your disease
  • Talk about your symptoms
  • Feel confident about your health
  • Stay positive

What can you do to live with your GI NET (carcinoid)?

Like all cancer, carcinoids and gastrointestinal neuroendocrine tumors can change your life

If you have been diagnosed with a carcinoid or gastrointestinal neuroendocrine tumor, known as a GI NET, it is normal to feel confused, overwhelmed, afraid, and even angry. Your family and friends may feel the same way.

Remember, it’s important to learn how to live with your neuroendocrine tumor. Understanding your condition may help you live as comfortably as possible.

Utilizing your care team

Knowing who to go to can help you better navigate your journey. If you or a loved one has been diagnosed with NET, you will likely have multiple healthcare professionals available to help you along the way. Some healthcare professionals that you may have access to include:

  • Oncologist
  • Surgeon
  • Nurse
  • Nutritionist
  • Psychologist/Social worker

Maintaining your health

Your doctor may suggest some things you can do to make living with a carcinoid or gastrointestinal neuroendocrine tumor easier.

  • Adjust your diet: Eating certain types of food may help reduce symptoms
  • Exercise regularly: Mild activity, such as walking, is best and can help reduce stress
  • Get a good night’s sleep: Get plenty of sleep and take naps when you can
  • Avoid stress:  Make time for yourself to do things you enjoy and keep a positive attitude

Continuing work and daily routines

Your family members and caregivers will be there for you throughout this journey. Don’t be afraid to ask them for help. They can help you with daily activities or cope with your feelings. They understand that the most important thing is for them to be there for you.

Your loved ones can help

  • Provide emotional support
  • Take notes and ask questions at your doctors appointments
  • Keep track of your appointments and paperwork
  • Drive you to your appointments
  • Prepare meals and do the grocery shopping

Let the people in your life know how you feel and what you are going through. Asking them to be more involved can help you continue with your regular routines.

Connect with others

In addition to your family, friends, and caregivers, there are other people like you and groups that want to help. There are patient groups for people with all types of NET. These groups work to improve the lives of people living with NET through support, awareness, education, research, and advocacy.

Building a support network is a great way to learn about your carcinoid or gastrointestinal neuroendocrine tumor and get more engaged with your care.

You should also ask your doctor or nurse for more information or about other groups in your area.

Know your disease 

Learning to live with a gastrointestinal neuroendocrine tumor starts with understanding your disease and taking an active role in your care.

This will help you

  • Get the best care possible
  • Stay on top of your care plan
  • Keep track of your disease
  • Talk about your symptoms
  • Feel confident about your health
  • Stay positive